
Leaders in our communities, nationally and online, who are driven by passion and purpose to stop Alzheimer's.
Join us in the fight to stop Alzheimer’s.
About Us
We are patients living with Alzheimer's or other dementias, caregivers, family members, and friends from across the country who are on the front lines of fighting this disease. We are working in our communities, nationally and online, to create new approaches to finding a cure, supporting those living with Alzheimer's and their families, and demanding action to stop Alzheimer's.
Strategy
We advocate for cutting-edge solutions to improve Alzheimer’s care and accelerate research. We draw on our experiences as individuals from diverse backgrounds living with Alzheimer’s and other dementias, as care partners, and as family members to demand and implement innovative initiatives for care and a cure in our communities, nationwide and online.
We write, speak, advise, organize, and advocate to ensure that the voices of those living with dementia and care partners are central to key decisions made by policy makers, researchers, and industry. We tell our stories to bring this devastating disease out of the shadows and improve the lives of those living with Alzheimer’s and other dementias and their families. We are driven by the struggles of our own families and the millions of Americans touched by this disease, and by the optimism that it can and will be defeated.
Leaders
Member | Background | Location |
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Jane Bandler | LCPC (retired) Caregiver 2008-2017 | Bethesda, MD |
Carol Bradley Bursack | Author, columnist, and writer, “Minding Our Elders” | Fargo, ND |
James Creasey | Founder and CEO, |
Denver, CO |
Michael Ellenbogen |
Living proudly with Dementia |
Jamison, PA |
Lynda Everman |
Founder, WomenAgainstAlzheimer’s |
Birmingham, AL |
Terry Frangiosa | Caregiver and Advocate |
Harleysville, PA |
Karen Garner | Author, "Missing Jim" |
Virginia Beach, VA |
Lisa Hirsch |
Author, My Mom My Hero |
New York, NY |
Lori LaBey | 30-Year Care Partner |
Maplewood, MN |
Marie Marley, PhD | Co-Author, Finding Joy in Alzheimer's: New Hope for Caregivers |
Kansas City, KS |
Ann Napoletan | Co-Author, Founder, Marilyn's Legacy, Founder, UsA2 Facebook Support Group |
Columbus, OH |
Daniel C. Potts, MD, FAAN | Founder, Cognitive Dynamics Foundation |
Tuscaloosa, AL |
Ellen W. Potts, MBA | Founder, Dementia Dynamics, LLC |
Tuscaloosa, AL |
Jessica Price-Parrott | Moderator, UsA2 Facebook Support Group |
Lincoln, NE |
Hailey Richman | Founder, KidCaregivers.com |
New York, NY |
Susan Kiser Scarff | Author, Dementia: The Journey Ahead, A Practical Guide for In-Home Caregivers |
Phoenix, AZ |
Kathy Siggins | Alzheimer’s Semipostal Advocate & Former Caregiver |
Mount Airy, MD |
Allan S. Vann | Author, “Reflections of an Alzheimer’s Spouse” |
Commack, NY |
Loretta Woodward Veney | Being My Mom's Mom & Refreshment for the Caregiver's Spirit |
Clinton, MD |
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5.7 million
people in the United States are living with Alzheimer's.
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16 million
people in the United States are projected to have Alzheimer's by 2050.
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15 million
family members serve as unpaid caregivers for a relative with Alzheimer's or another dementia in the United States.
"A cure for Alzheimer’s: a fantasy, a wish, an impossible dream—the same words that were said to Galileo, Edison, Curie, Salk, and whoever dreamed up the internet. Yesterday’s dream is today’s reality."
Trish Vradenburg
Co-Founder, UsAgainstAlzheimer’s

Advocacy in Action
The Alzheimer’s Stamp by Lynda Everman
"If you think that one or two people cannot make a difference, I hope you will read on and take this as proof that each of us can."
We must increase public- and private-sector investment in research

Take action now.

Caregiver Support
Resources
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Learn
National Alzheimer's Summit: Diversifying the Race for a Cure and Care
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Share Your Story
Bring Alzheimer's out of the shadows.
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Join the A-LIST
Make your opinions count for Alzheimer's research.